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Hi I'm new to this group and have read some of the posts. There are
alot of questions and different ways to deal with narcolepsy that are
posted. Though I read a lot of them I still have problems that no
body ever seems to have answers for.
Im a 30 yr old male in the US Army that was diagnosed with narcolepsy
in Nov. of 2002. I thought how bad could it be take a few pills and
everything would be fine. But was I ever wrong as time has gone by I
noticed something at times it seems to get better but then it gets
worse. Not only did i realize I have to deal with a disorder that
has taken part of my life away but my family suffers too. See I have
a wonderful wife who tries to support me though at the same time she
suffers from C.P. also there is my 18 mos. old daughter. They both
wait for me everyday to come home so I can play with my daughter and
talk to my wife but it never fails I sit down and within minutes I
have either fallen asleep or have gone into some sort of trance not
being able to move. Even if I can stay physically awake mentally im
not.
Ok enough of my home life I've been in the service now for 10 years
and through the years I've enjoyed my job for the most part. Now I
have been found unfit for duty which I understand. Barely being able
to stay awake and coherent I can't really defend or perform my duties.
Well they sent my medical records to medical review and become
official I'm unfit for duty. They also gave me 0% disability
rating. Ok so here I am trying to find a job to support my family,
trying to control my narcolepsy and wondering if we will be living on
the streets.
I realize alot of you think Im just whining and complaining. But
what I need more then anything else is to know that there is life
with narcolepsy.
Thank you
Gregory