Disabled Couples
Hi Gregory,
This is Harvey. I found your letter quite interesting. My wife, Melanie, has Usher Syndrome causing deafblindness and I may have Narcolepsy. I go for sleep tests in about 11 days. It has been very difficult, Greg, to lead a normal life. My first marriage failed, I think mostly due to my former wife's inability to to cope with her own health problems. Maybe in part, also because of my problems. We had been married about 12 years before a separation and a total of 15 years before a divorce came. She was later to be diagnosed as having MS.
It has been much better with my present wife, Melanie. The sleepy times still exist and maybe even more so in this hot, dry Arizona weather. Melanie has become more supportive as she understands more about my condition and she fully believes that I have Narcolepsy. I seem to be going through a stagnant stage waiting to be tested and to get the test results. The sleeping disorder has greatly affected my life, but it has not prevented me from having a full life. And there are many out there ready to help you in this difficult time. I really would consider a good lawyer, because maybe you have not been treated fairly. With the support of your mate, I think it can go well for you. Your concerns are very real and I urge you to take the initiative in getting whatever help or support you need. I wish you the best.... HAB