WP Weblog

Sorry to hear about your experience with Rosacure. I'm not in
Canada, but I found an internet pharmacy in Calgary from which I
ordered it. At first it made my rosacea worse too, almost
immediately on contact. But I thought maybe it was a case of "it
gets worse before it gets better," and that's proven to be true.
I've been using it for about 8 weeks now, and it seems to have
helped. When I apply it now, the redness lessens almost
immediately. The jury is still out on whether it's going to help in
the long term, but I'm trying my best to be patient with it.
I also had problems with dryness, especially forehead and nose, areas
that were historically very oily for me. Rosacure really helped with
the dryness.
Better luck with the next product. Do keep us informed.

Hello all, I can't tell u how happy I was in finding all of u!! What a
treat. Took me a bit to figure out how to get all hooked up, but I
think that I am there now. I have had N for some time now, but am
finding it rather hard to deal with as of lately, perhaps some insight
and thoughts from all of u is just what I need. Can't wait to chat and
hear back from u.
Christie

HELLO ALL I HOPE YOU HAD A VERY HAPPY AND LOVING
HOLIDAY FULL OF HOPE AND HAPPINESS. I JUST WANTED TO LET
YOU KNOW THAT I ADDED A NEW LINK ITS CALLED FROM THE
EDGE. ITS ABOUT A MAN WHO GOT INJURED AND HIS LIFE IN A
WHEELCHAIR. HIS NAME IS MICHEAL KANOUFF..HAS ANYONE HEARD OF
HIM? I WOULD LIKE YOUR INPUT ON HIS STORY, ITS WELL
WORTH THE READING!!! ITS VERY INSPRING...A MUST TO
READ! IT WILL HELP ALL WHO IS FEELING DOWN ABOUT BEING
IN A WHEELCHAIR. PLEASE READ IT AND LET ME KNOW WHAT
YOU THINK. THANK YOU,<br

OOPPS I HIT THE M INSTEAD OF THE N....LOL GOT TO STOP DRINKING FROM NOW!! JUST
KIDDING!!! TAKE CARE<br

My 3 sons (and often husband) love to get me going in a good towel fight. I
have to be very quick, I only get a few good snaps in before I am sprawled
out on the floor and they all attack. I have gotten a little smarter though,
I now make sure that my towel is one of those very thin and small cotton
ones, so I can still get a snap in here and there from the floor.
Christie

Thank you MM for responding to my post. From the sounds of it, you
gave me some informed leads :) I'm really glad I decided to post a
message, I had just gotten to the point of giving up :( I will
definitely look into your suggestions, especially Herbacort. Again,
thank you for responding! (Geez, all those thank you's....do you
think I'm happier now that I was earlier today?? LOL)
Fritz

By now all you easterners are fast asleep - it is now 9:30 pm Pacific
Daylight Time.
As we are all aware, driving is a problem for a person with narcolepsy.
I mentioned that loud racous music is good and also story tapes. Does
anyone else have any suggestions?
When driving, I sometimes have the feeling that someone, like a witch,
has cast an evil spell over me. If I stop the car and get out, then the
spell is broken and I am normal. I always hate that feeling -
especially when one has to close one eye, because there are two white
lines on the road. Do other people feel this way?
The answer of course is to get more sleep, as this is a symptom of
sleep deprivaton. What grandmother said re one hour of sleep before
midnight being worth two hours after midnight, is true. I also find
that naps, when I am tired are really good, but this is not always
possible.
My daughter was telling me re identical twins who both have narcolepsy.
They both have cataplexy so bad that if someone tells a joke, they have
a drop attack. Evidently, when they see each other, they try to have a
short snappy joke ready to launch. They tell it, which causes the
other twin to laugh and have a drop attack, The teller of the joke, in
turn, starts to laugh, which causes him to drop. There they lie, both
lying on the floor and writhing in a cataplexic spasm. Funny? I guess?
Does anyone have any funny stories, such as having a hypnogonic
hallicination and interjecting it into the normal conversation?
Dwain.

I WOULD LIKE TO WISH EVERYONE A HAPPY AND HEALTHY
AND SAFE NEW YEAR... BECAREFUL WHEN YOUR OUT AND
ABOUT VISITING YOUR LOVE ONES AND FRIENDS. AND DONT
DRINK TO MUCH !!!! BUT JUST ENOUGH.. LOL LOL I WILL SEE
YOU ALL IN THE NEW MILLEMIUM...<br
ANGELA<br

Hey Nice weather down there ALL YEAR ROUND.

Let me know when you get it and how it works for you!!!.

Im 95 % sure you will pleased with the results,,adspecially

with the dry skin.

MM

Angela, thank you again for everything you've done for me; you da bestest!!! You
and Jim have a great celebration Friday night, ok? Ray :))

About three hours difference then for me. It is 6:20

on 4/28/02 8:14 PM, Jamara at Jamara@... wrote:
Thanks! No I am not in Canada...I'm in California.
Carrie

Happy New Year, everyone. For those who believe
the decade is changing, Happy New Decade, for those
who believe the century is changing, Happy New
Century; for those who believe the millenium is changing,
Happy New Millenium. For all the rest, Happy Days!!!
LOL<br
celebrating!!<br

It is a little after 9:00 here right now. There were only a couple of people
that joined the chat tonight. I think several people may have been confused
about the time. I will try and see if anyone would like to try to meet
tomorrow.
Carole

oh my gosh....I am terrible at figuring out these things. I am PST.
Helllllllp!

tampss welcome to the club...<br
little more about yourself.<br
joined us..<br
a merry xmas and happy and healthy new year!<br
angela

Oops. I accidentally put 8:00 Eastern Standard Time. It should have said
Eastern Daylight Time instead. Sorry for the confusion.
Carole

Hi mm,
Coincidentally, I am waiting for my first order of Herbacort! I am so happy
to hear your comments about the stuff. I have the dry skin type of rosacea
with varying degrees of redness. I sure would like to find a product that
helps with the dry component.
I couldn't quite tell from your post if you actually used the product
yourself.....do you? I would be interested to hear your experience of it
with dryness and redness.
Thanks,
Carrie

I WOULD LIKE TO WISH ALL MY MEMBERS A VERY MERRY
CHRISTMAS AND A HAPPY NEW YEAR..!! ALSO MAY YOU ALL BE WELL
AND HAPPY IN THE COMING YEAR.. GOD BLESS YOU ALL. BE
SAFE WHILE YOU TRAVEL TO SEE YOUR LOVED ONES.<br
ANGELA AND JIM &lt;3

Yes, I find audio books to be very helpful too. I have found
that any repetitiuos work leads to a very sleepy me. I like
to walk around and make sure I am in contact with other people
so I can avoid feeling tired. Sometimes it works.
bye
Sharron

Hi Misty,<br
friends.<br

Whooops sorry!!.
I didnt post this message for the WHOLE GROUP in respond to FRITZ from
Canada.
3 products that really help for EXTREME REDNESS is,,
1. Rosacea Cream by herbacort.www.herbalab.com
2. Vitamin K cream.Vita K
3.Anti redness cream by Neo-Strata
Herbacort is All Canadian. They are located in B.C.
Vita-K is availabe at drug stores across Canada,and so is Neo-Strata.
As I told Fritz anyone with DRY skin should avoid Neo-Strata
as it dries out your skin and could burn.
The rosacea cream is BEST for dry skin rosaceas,,
It is the BEST moisturizer that money can buy,,,and they are so
CONFIDENT in their product that they offer a 7 day money back
gaurentee if you do not see SOME results in that short time.
This cream has worked for many where everything else has failed.The
main ingredient is Pine bark.
Oh,,yes!!!And I forgot,,Emu oil does work wonders on SOME people.
MM

Hi, Misty, welcome! Methinks y'all gonna love this club; I sure do! Share some
info about yourself so we can get to know you better.<br

Hi Everyone:
Would someone tell me where the chat is going to be tonight. please. I
am assuming the time will be 8:00 PM EDT. Again, let me know time as
well.
Thanks loads.
Jean

Hi,
What is the web address of the company that you ordered Dalacin T from?
Nancy

Hi Carol, et all
I'd like to participate in the group discussion tonight but I'm not
sure of the time. All I've seen is 8:00 PM
I suggest you include the time zone you're in so we can adjust our
clock to be on time . . . LOL
Thanks,
John Dyer - (sleepy in Georgia)

Hi Misty...welcome to the club. It was good chatting with you today and I hope
you nejoy the club and get a lot from it. They are a good bunch of people.:)

Well a quick hello all from "sleepy ol' Adelaide" capital of Sth.Australia (in Australia). I hope to be able to participate in the chat regularly however depending on the time it's on in relation to the time diff between countries. Still hoping to hear from any/more "N" "SA"(sleep apnoea) sufferers in Australia.Oh well better get some sleep..........haha, to make up for lost sleep of late........???????????????LOL hear from you all soon. Peter A.

EVERYONE WE HAVE A NEW MEMBER HER NAME IS
MISTY... I WOULD LIKE TO PERSONALLY SAY WELCOME
MISTY....MISTY IF YOU CAN PLEASE WRITE ALITTLE ABOUT YOURSELF SO
WE ALL CAN GET TO KNOW YOU BETTER! THANK YOU. AGAIN
WELCOME!<br

I too suffer from extreme redness on my face. Some days it is down
to a "dull roar" but it is still quite red compared to my neck etc.
I have not had the time to go thru all the posts here yet, but my
problem is more complicated....I also have really dry skin! I need a
moisturizer for sure. I have tried some that right away made my
redness worse...and some that seemed to moisturize great and give me
hope, and then a few days later - increased redness! Here in Canada
we also have a product called "Rosacure" that is supposed to help
with the redness. Guess what?? Made mine worse!
I have had a couple of laser treatments. I was told I'd see some
results within 3 weeks of each treatment, and from my point of view,
I haven't seen any...especially with the redness. I have tried a
Loreal product I saw posted that doesn't seem too bad at covering up
the red, but alas, the dry skin flakes just make it worthless. Sure
I look fine from a distance but that doesn't help.
Even still, I am not one for makeup (never really was) and wearing
makeup daily especially one that doesn't do the trick is not an
option for me. My redness is total face, and brighter (deeper?) in
the cheeks. This condition has caused quite a hit to my self-
confidence. (and that's not a good thing!)
After all this blathering, I was wondering if anyone has any
suggestions for the redness. I welcome all suggestions, but will
admit that products available in my area of Canada are of most
interest to me. (the exchange rate is horrible!) To refresh, a good
moisturizer & something for redness.
I have tried Cliniderm, LaRoche Labratories, Curel, St Ives formulas,
Rosacure, Aveeno, Metrogels, Jameson Vitamin E oil, Vaseline Dry Skin
lotions, etc etc etc. Oh, and the doctor made up a mixture of
antibiotic powder in a cream and that didn't work. My dermatologist
said that the only way to get rid of the redness is with laser
treatment and frankly, at 400 bucks a pop, I'm not happy with the
results I'm getting and am not confident they will do the trick.
And if I haven't said enough, I'll just add that I have had this for
a bit over 3 yrs now.
Thanks to all!
Freda

HI EVERYONE,<br
FEELING WELL AND IM TRYING TO FINISH PAINTING MY
BEDROOM...MY NEW FURNITURE IS COMING....I HOPE ALL IS WELL
WITH EACH AND EVERYONE OF YOU!!! DID EVERYONE HAVE A
GREAT THANKSGIVING? MINE WAS QUITE...BUT GOOD.. LET ME
KNOW IF ANY OF YOU ARE GOING ANYWHERE FOR XMAS!! ME IM
STAYING HOME. IM GOING TO TRY TO GET INTO THE SPIRIT OF
IT....I WONT HAVE MY KIDS FOR THE HOLIDAYS MY EX IS
TAKING THEM SO I'LL BE HOME ALONE!! BUT ANYWAY...I HOPE
EVERYONE HAS A HAPPY AND HEALTHY AND SAFE HOLIDAY!!! BE
CAREFUL I DONT WANT ANYTHING TO HAPPEN TO ANY OF MY
MAEMBERS!!! TAKE CARE ALL.<br

Any of you use this? What have other effective treatments been?
Thanks, Christy

Thank you. I will do my best to be a regular
Sharron

IO can only speak for myself, but my being in a
chair hasn't changed the way I do things....it does
change the way I think sometimes though. I am alot more
thankful for the little things, more compassionate(?) and
definately, definately more patient! I try to keep in mind
the importance of friends and family. I think Ray,
you seem to be a very thoughtful person, I don't mean
any harm, but don't try to figure out what is
different..those things will show themselves, spend that time
enjoying your friend and the things you can do together.
You may actually be concentrating too much of the
DISability and you could create barriers where there are
none. My tree is 9 1/2 ft tall, I do as much or more
shopping now, and with the additional time I decorate
everything. Again, I am talking for myself, I don't always
want to have people go out of their way to point out
the fact that I am in a chair, I already
know.<br
offend,<br

Enter your vote today! A new poll has been created for the
rosaceans group:
What other prescription drugs do you use not
listed in the above polls?
o azithromycin (zithromax)
o biaxin
o clarithromycin (biaxin)
o Clindagel
o Cleocin T
To vote, please visit the following web page:

You know, your experience really does sound like those I have. I bet there
are people out there so thankful for your example.
s

Well, hi, everyone! Time to wish each of you a
great holiday season. Hope it proves to be stress-free,
or as stress-free as it can be and I hope you all
find time to relax and enjoy the company of those you
love. I find this season such a rejuvenating
time...time to slow down and focus on the good things that
happened during the year, time to get ready for an
exciting new year. This year, though, is a little
different for me. Because of my new relationship, I'm
looking at EVERYTHING from a new angle, with a new
understanding. Do any of you care to share with me how your sci
changed this season for you? Did you use to decorate and
now you don't? Did you use to have a fullsized tree
and now you have a 2 or 3 foot one so you can reach
it to decorate? Did you use to go shopping but don't
anymore? What changed and how did you adapt? If you're an
AB spouse of an sci, how did YOU change? What do YOU
do differently now? Does Christmas mean more to you
now, or less? These may seem like dumb questions to
those of you who have dealt with sci for a long time;
but I've only been involved for a few months and
these things come to mind and I'd just like to know.
Anyway, again I want to send best wishes to each of you
and I pray that God will grant all of you happiness
and peace of mind. Ray

While I did have an occasional "bump" from the rosacea, the major problem
for me was the redness. In spite of everything I tried, it NEVER went away.
I have even gone through seven photofacial treatments, and the people at the
skin center were puzzled - they had never seen anyone so resistant to the
treatments.
The Cleocin T (or Dalacin T, the generic) are actually prescription
medications. Me being the rebel that I am tho, and not wanting to go
through yet ANOTHER Doctor, (the one who told us about it lives in NY, I am
in Fl) I went online and found a company that I could order it from without
a prescription. It is a 30 gram tube, oderless and colorless, and you apply
it twice a day. (I just put it on before I put on my cover-up, and base.) I
found it for 15.95, and the tube has lasted me about two months now.
As I mentioned, we are all different, and it may or may not work for anyone
else. The Doctor who told my boyfriend about it however mentioned that he
has had great success with it with all of the patients he has put on it.
And for so little money - well, considering how much the photofacial
treatments were, I have no problem spending 15.95. I had reached a point of
desperation - almost ready to resign myself to thje fact that I would ALWAYS
have a bright red face, and that I would never be able to go on vacation
with friends, hop out of bed, wash my face, and just come down to breakfast.
There are so many ways that this condition affects us. When I found
something that after all this time actually worked for me, I couldn't wait
to share it with everyone on this board.
I am including a link that will go into more extensive detail about Cleocin
T, and just to let you know - I have had none of the possible side effects
that were mentioned.
http://www.nlm.nih.gov/medlineplus/druginfo/clindamycintopical202146.html
Good Luck everyone -
Donna

Thank you to all who answered my question on perceptual problems. I could
tell so many stories about what has happened in that area but I won't bore
you. The request that I have is that we don't use abbreviations in our
e-mails. Mainly because I don't understand what they mean and I don't want
to miss anything.
another medication I am on is clonazepam. Apparently I have restless leg
syndrome. All I do is twitch violently at night when sleeping and I have
woken myself up by really biting my tongue hard! Does that happen to anyone
else?
Wow!! We really do have a lot of strange things.
bye for now
Sharron

I LEARN TO TYPE!!!! Sorry for the typos. I just washed my fingers and can't do
a thing with them...LOL<br

Privacy Issues
You may wish to modify your 'Marketing Preferences ' under

I would like to try to start our group chat meeting on Thursday nights at
8:00 pm. I will send out another reminder to the list tomorrow night. I
hope everyone will be able to participate. If this is not a good time for
anyone, please let me know and I will try and set up a second time each week
so that everyone can be included.
Thanks,
Carole

Mitch a Quad and member of Southeastern PVA and
living in GA. now wishes all a Happy Holiday period and
remember the Veterans Wheelchair Games are set for July in
Texas this next year. See sight pva.org for further
information.

Hello,
This email message is a notification to let you know that
a file has been uploaded to the Files area of the rosaceans
group.
File : /Privacy Issues
Uploaded by : bradybarrows <brady.barrows@...

Hey Sharron and all,
Everyone has given their descriptions of perceptual problems and I now
have to take a second look at something that happened to me quite awhile
ago.
One evening when I was driving home from work, I was fighting sleep.
This would happen often and I usually stopped and took a 10 minute nap
or walked around the car for a few minutes. This one particular night I
did neither as I was pretty close to home and there were very few cars
on the road. Ha Ha. Should have napped. Coming down the street toward
my car, was a huge chicken, standing up straight like Big Bird, with a
long pair of knee socks with bold, colorful stripes, going horisontally
around both legs of this extra large human size chicken. It was in the
winter time, so the socks were needed, I guess. When I finally shook my
head and became alert, I realized it was a young woman, dressed warmly,
with a bold striped long scarf around her neck. What a shock for me. I
was very distrubed by it and didn't know what to think. Now I have my
answer. Perception perhaps! If it were a hallucination, the woman
shouldn't have been there, right? I really don't know the answer to the
question, but I seem to understand more about N. It is very dificult to
pinpoint anything. But now I have new info to work with. Fortunately,
I do not have anything like that now, just N & C. On Provigil so I do
not have EDS and looking forward to going on GHB for C. I pray I am
able to take the drug.
Thanks for some more insight to this confusing disorder.
Jean

Thank you so much for telling me that. I have been wondering if I was crazy
or something.
Sharron

Sharron,
I also have problems with misinterpreting things from a distance. For
instance, just the other day I saw a young man in the back of a pickup truck
with his shirt off and thought that he was a dog. I do things like this all
the time. My vision is fine so I guess it must just be part of the
Narcolepsy.
Carole

Wow, no new msgs for days...everyone must be
enjoying their holiday. I hope so, mine was fantastic
(except for having to be away from my friend(s) on
here!). Hope to be chatting with y'all again soon...Ray

Hi Donna,
I'm so glad the Cleocin worked for you!! I thought that was more of an acne
medication. I don't have acne with the rosacea, does it work on just
calming the redness?
Thanks,
Elena

Hello everyone. I am a 35 yr old female from Jacksonville Florida who has
suffered from rosacea for probably about 8 years now. I have tried many
different treatments over the years, including everything from Emu soap to
photofacial. Recently my boyfriend contacted a physician friend of his, who
told us about a little known topical called Cleocin T.
Not wanting to go to yet another Drs appt., I ordered the gereric equivalent
online, and have been using it for about two months now. The generic is
called Dalacin T, and cost me fifteen dollars. For the first time in YEARS,
I am not having to wear a green cover-up under my makeup. I am even
venturing out without any makeup at all. I cannot tell you how wonderfully
freeing it is to be able to do this -
I know that all of us respond differently to different treatments, but if I
am able to help one person find something that can help, I am glad to do it.
Feel free to contact me at any time, if I can be of further assistance.
Donna Pasquale

Any night is fine with me!
Jean

Hi, My name is John . . . and I have "N". I received an email,
forwarded by a friend. I've signed up for the chat group and would like
to be notified when the group meets.
Thanks,
John (sleepy in Georgia)

Hi, everyone...I just wanted to ditto Angela's
comments and wish everyone the very best Thanksgiving.
Take time to remember all the things we have to be
thankful for; I know for me, this past year has brought so
many new things for which I am deeply grateful, not
the least of which is finding the woman who led me to
become part of this club. I thank our Lord daily for the
blessings He has given me. Be safe so we can all get
together again after the holiday. God bless!

please discontinue my e-mail, thanks

I JUST WANT TO WISH ALL OF MY MEMBERS A HAPPY
THANKSGIVING. SORRY I HAVENT BEEN ON, I'M PAINTING MY BEDROOM.
LOTS OF WORK. I HOPE YOU ALL HAVE A SAFE AND HAPPY
HOLIDAY!<br
KNOWING ALL YOU WONDERFUL PEOPLE WHO ARE IN MY LIFE, MY
GOD BLESS EACH AND EVERYONE OF YOU.<br
ALL.<br

I am a 48 year on brown sequoide Quad. C4-7 and
T4-7 incomplete injury. Love wheelchair sports, just
got a hand bike. Competed last 5 years in the
Veterans Wheelchair Games. Love to here from you. I am
also a Veteran Service Officer for Paralyzed Veterans
of America since 1985. See
PVA.ORG<br

Yes, I think I also suffer from all of those odd symptoms. One of my
biggest concers though is that I seem to have perceptual problems. I have
trouble judging distances so when I shop I have to make sure I don't bump
into things with the cart. Also, when I see something at a distance I often
misinterpret what it is like misreading signs. Does anyone else do this?
Sharron

Juan,
you are right....sorry for the mistake....I will correct it....
Brady Barrows

Hi Ray,<br
contoured base with a gel cusioning. Hope this is of some use.<br

Any night is fine with me. I think its a great idea..
Louann

Hi. I recently signed up to this mailing list because
I recently realized that I too had rosacea. After doing
some research, I found Dr. Nase's website and ordered his
book. I received it a couple of days ago and devoured it.
My questions to this group is:
Has anyone followed his treatment recommendations? If so,
what results can you share?
Thanks,
-Juan

I've heard from Nicci on cushions and I'd like to
hear what others have to say about them...what kind is
best? Why? Can they be rented or are they only avail
for purchase? What kind to definitely avoid?

Hello sweetpea and carolinawheels...<br
out with my boyfriend and our buddy last night and
when i walked away this girl felt she needed to
compliment my guy on how beautiful his eyes were....very
sneaky!!! see these girls? but he told me as soon as i came
back..but towards the end of the evening i found something
out last night that i didnt know before! my boyfriend
really hates when that happens! he said that he wishes
he wasnt in a wheelchair because these ladies...he
doesnt want them to comment on how nice his eyes
are...so all in all it really bothers him and that he
feels his chair makes them come to him.... he said that
he loves me and doesnt want them to do that.... i
never knew that it really bothered him like that! let
me know how your guy feels about this and how you
feel carolinawheels..... thanks<br

I usually go onto the computer around 7:00 in the evenings. Any night would
be fine.
Sharron

Hi. Why is it that when I joined the "rosaceans" group I received
a welcome email stating "Welcome to the rosacea-control group" ?

Hi all,
My name is Kerry, and I was finally diagnosed with narcolepsy early
last year. One earlier GP had suggested that it was a possibility
about a year earlier again, but then came the wonderful period of
trying to get other doctors to take it seriously. I got told I was
just high on the scale of people who got sleepy in the afternoon, which
was a normal experience. I did point out that I got sleepy in the
morning the evening, and all the times in between, but this was
apparently umimportant. It's hard not to know there is something wrong
however when you are ready to go back to bed two hours after you get up
in the morning, and coffee makes a nice bedtime drink!
I think it must be very hard for other people to understand the
frustration of how it feels to fall asleep regardless of whether you
want to or not, and whether or not you had a good night sleep the night
before, and to have it happen all the time.
Eventually they sent me to get a sleep test and discovered the truth.
The best thing about this was it allowed me to finally get some
medication. This was a big help as I was at Universtiy at the time, and
finding it increasingly hard to manage. I'm on dex-amphetamine now, and
I couldn't believe the difference it made straight away, I actually
read two books the first weekend I was on them, because I could.
It felt like cotton wool stuffing had been removed from my brain all of
a sudden. My biggest ongoing problem is still public transport, I fall
asleep in any vehicle, really fast, so driving will probably be off
limits for me, even on medication.
I am hoping to try provigil next year when it becomes available for
Australia. I also hope this new gene discovery has some benefits down
the track.
I have to say that the biggest relief throughout this whole experience
had to be putting a name to it, and realising I did have a legitimate
problem, and I wasn't just a lazy person. I could stop beating up on
myself. It's no less annoying to be watching a tv show, which I am
enjoying only to wake up and discover it half way through the next
show. I hate that!!
Does anyone here also suffer the other fun stuff that goes along with
Narcolepsy, the cataplexy, hypnagogic hallucinations and paralysis? I
guess I got the bonus prize cause I have them all in varying degrees.
I actually went to the doctor first in relation to the cataplexy, when
i kept spilling my coffee, when I laughed.
It's great to be able to talk to other people who have been down this
road too. Looking forward to hearing more from you all.
Kerry Haywood
===
"You are born naked, everything else is drag!"
RuPaul-Gender Illusionist

go to:
http://www.rosaceadiet.com
--
Brady Barrows - webmaster for
http://www.rosaceans.com

hello. would someone please tell me about this diet? i woulk like to
know some details before i consider ordering it. what is the concept?
what foods are included? what's the deal? Thank you- elisha

Well I can try, you might have to lick it off the envelope though.:) Thats if a
rabid US postal worker doesn't get to it first<br

That sounds like a great idea, it would be a good chance to keep up to
date, and meet everyone from the list. How about in the early part of
the week, to avoid the busier end of the internet week.
Also as I am from Australia, some time considerations are important.
Maybe early morning here, and early evening for the US, or vice versa
so eg:
I'd be online on a wednesday morning, and the US would be tuesday
night.
I look forward to the chance to speak directly to you all.
Kerry Haywood
===
"You are born naked, everything else is drag!"
RuPaul-Gender Illusionist

Ok, I want some of the Carmel Mud Cake. But, back
to the bathroom issues....I fortunately have a LARGE
bathroom. My house is very old and all the rooms are LARGE.
But a sink w/o a cabinet, so you can actually get up
to it is nice and wrapping the pipes with foam so as
not to burn your legs is a good idea. Those that are
actually working on their own bathrooms can get a lot of
help from Vocational Rehabilitation, they pay for just
about anything, I am getting them to put a lift in my
house so I can utilize my upstairs. <br
someone,<br
accept you too!!LOL

Hi Doreen,
so sorry to hear of your bad news. Stress is also a
big trigger factor for me.
Can I ask you how long it was after your miscarriage
that the rosacea became pressent?
Many thanks Nigel
Take care!

Miss Lewis,
I am unsure of what particular time to suggest for the chat. My daughter
is expecting a baby soon and right now we don't have much free time, and
don't know what to schedule from one day to the next. So just go ahead and
set a time and I'll join you if I can.

Hello, I just joined this group today in hopes of finding out a few things about rosacea and comparing some notes. I am also interested in this diet that I have heard a little about. Although, it seems a big trigger for me is stress. My most recent flare up seems to be brought on by a miscarriage I just had among some other problems.
A little history on me..I had acne as a teen and it had mostly cleared up as I became adult. About four yrs ago when I was 28 a small patch appeared on my face. Some people had mentioned rosacea but I wasnt really seriously looking for treatment because it was very mild. About two yrs ago, I went to an eye doctor because I was having some blurry vision. He ended up being the one to diognose me with rosacea -it seems that rosacea can cause blurred vision among some other side symptoms. I never did get to a dermatologist, since the patch would flare up on and off, no big deal. Then about a year ago, I went in a hot tub on vacation, which caused a major flare up. Soon after I went to my reg. doctor for swolen glands. She could find nothing wrong except for the flare up. It seems that rosacea also will cause swolen glands because in reality, it is an infection needing to be fought off.
I guess what I hope to find out for now is if there are other side effects of rosacea. These that I mentioned dont seem to be well known, and I wonder if there are others.
Doreen
2 Timothy 4:2 Preach the word;
be instant in season, out of season;
reprove, rebuke, exhort with all long
suffering and doctrine. KJV

I would like to start a weekly chatroom for those who are interested. Please
send me suggestions on what days and/or times would be good for everyone.
The chatroom will be open at all times but I would like to have at least one
night a week that we all try to participate. If anyone is interested in
checking it out, go to:
<A
HREF="http://www.egroups.com/ChatPage?listName=narcolepsy"
com/ChatPage?listName=narcolepsy</A
After I have received several suggestions on a day and time then I will send
an email and let everyone know when to meet.
Thanks,
Carole

Hi guys. I was going to write and tell you about
my nightmare bathroom, since we are talking
modifications.:) The bathroom in my house is so tiny, not even
room to turn a chair and at the moment I don't have
the thousands of dollars to get it modified. A friend
of mine who is a Physiatrist (I think that's how you
spell it), suggested getting an office type chair, on
casters. Its a great idea, It can be raised and lowered to
whatever height I need and as it swivels it means I can
get at anything with just a spin of the chair.
<br
to now work in a hosptial, so accessability isn't a
problem. As I work in an Emergency Department though the
major problem I found was acceptance. Looking back
though I think it was more me trying to prove to them I
could do the job, than them thinking I couldn't.:)
Almost 12 months down the track and I think I am
accepted fully, if only for my Caramel Mud Cake.

Hi Peter,

My name is Sharron. I was diagnosed firstly with Sleep Apnea two years ago. I was falling asleep at work for hours and I went to a sleep doctor who set me up with a machine to use when sleeping. Well, there was improvement, but I still had periods when I just couldn't stay awake. My doctor then tested me and said I had Narcolepsy as well. I couldn't believe it! I am on Ritalin 3 times a day but there are days when I am still very tired. At least on the medication I can force myself to keep awake.

I agree. We do need support. It is so hard to describe to people how it feels to always be tired.

Do you get treatment for your apnea? Did you gain weight before you were diagnosed? I did. I thought it was because I quit smoking but I suspect it was because for a long time I was just eating and sleeping. My husband is very supportive and since we work in the same place, he drives back and forth to work on most days.

Hope to hear from you again.

Sharron

hi,
is this product a presription item or something i
can find at a health food store?
thanks!
Carrie

Hi my name is Peter i was diagnosed with narcolepsy in March of this year after a long battle with the dreaded sleepyness. I work as a courier driver which made it very hard for me to work. So i was taken of the road for 3 months till they worked out what was wrong with me. Finally they told me I had narcolepsy Sleep Apnia and at one stage they also thought i had epelepsy thank god i didnt have it though. Im still going through the process of finding out what works for me but gladly im back on the road and im on dexenfedamine twice a day more if needed so far so good. Ive looked on the computer to find any support groups that are around and have only been able to find this one so i thought id give it a go and see who is around, after all we need all the support we can get, although im very lucky i have a fiance that has stuck by me through the worst of it and we are still going strong, it was she who actually found this sight as she was given the egroup sight for a problem
she also has (which is not related to my problem ) so anyway i look forward to hearing from everyone

Hi, Angel! I'd like to see positive comments in
here...things like what someone did to improve their life or
what job change was necessary because of the sci and
how it's working out. How about anyone with a job
telling us what they do? Maybe that would give someone an
idea of something that THEY could do; or suggestions
for friends of sci's that would make the
relationships better. I'd like to see pic's of how people
modified their homes to accommodate their needs, pic's of
the members. Articles might be helpful too...I
recently read a long article from one of our local dailies
spotlighting the Denver quad rugby team and their efforts to
get to the Paralympics. I didn't even know we had
such a team! 'Course I didn't know a lot of stuff
related to sci before I met Nic. I guess I just want to
see stuff that helps people believe in themselves and
helps people like me be a better friend.

done deal.....sorry to see you leave....
Brady Barrows
--
Brady Barrows - webmaster for
http://www.rosaceans.com

I have started working on a web page about Narcolepsy. It is nowhere near
being finished yet, but I would love for some of the members of this list to
take a look at it and let me know what you think. If you think of anything
else I should add to it or if you have any other comments or suggestions,
please let me know. Also, please remember that this is the first web page I
have ever made so I am sure there are some mistakes in it.
The site is:
<A
HREF="http://www.geocities.com/hotsprings/villa/1204"
/hotsprings/villa/1204
</A
Carole

Your story sounds a lot like mine. I've been having strange pass out
spells for nearly 5 months now and this whole time I've never known what was
wrong with me. I've gone to several doctors that have poked and prodded me and
done tests on me and everything and none of them could figure out what was wrong
with me. Needless to say, I was very frustrated.
I had a waitressing job once. I was good at it at first, but over time
there would be a period of time when I would forget even the smallest things. I
would easily forget something that my boss told me five minutes ago, or I'd even
forget what I had just eaten! I lost that job because my boss just thought I
was ignorant, I couldn't get her to understand why I had been so forgetful.
There have been times in school when I'd fall asleep in class and no one
could wake me up. My parents were worried, but I was just embarrassed that
everyone would see me like that. There was another time when I was driving home
from another town and I must have fell asleep on the way back because I woke up
with my car in a ditch. I didn't tell my parents that because they would have
taken me straight back to the doctors, and I knew they wouldn't be any help. I
was getting scared because I couldn't figure out what was happening, but the
more I research on narcolepsy, the more it looks like I've found my answer.
I don't know what to do now. I don't exactly want to go back to the
doctors, especially if I figured out what was wrong with me before they did.
Actually, I didn't figure it out on my own. I owe a lot of it to my cousin,
who's now in college for medical studies. I hope that eventually this will all
work out, and I'm glad to know that I'm not alone.
Sincerely,
jessica hodges

i just would like to ask a question to all. what
would you like to see in this club? do you have any
idea's that would make it more interesting? please post
your opinions. thank you all.<br

I'm 55 years old and I had been diagnosed with mild narcolepsy over
thirty years ago. I took Ritaline for a while but stopped because of the
side effects. By watching my lifestyle, I have managed to control it
over the years. I have the whole works, cataplexy, sleep paralysis, wide
awake dreams.
For the past few years, however, I have been noticing a strange
phenomenon. I become cataplectic when I use an elevator, an escalator,
or go under certain florescent lights. It happens even if the escalator
is not operating and I walk up it. At first I though I was imagining it,
but I have experimented with it extensively, and I am convinced that it
is real. You could blindfold me and take me to certain shopping mals,
and I could tell you exactly when I walked under certain lights.
I just landed in Ottawa for a few weeks on my job. I couldn't easily
avoid the elevators and escalators since my hotel is on the 8th floor
and my job is in another building on the 7th floor. At the end of one
week, I felt like an old man. It takes hours for me to recover from even
one elevator ride. So for the second week, which has just passed, I
walked up the stairs to both places. A good workout. At the end of the
second week, the cataplexy was completely gone and I was feeling great
from the exercise. This is the last night in my hotel and I took the
elevator to the 8th floor about an hour ago. Bang. I've lost almost half
of my muscle tone, and I haven't recovered yet. My legs are twitching. I
also get speech slurring, a loss of mental acuity, and memory loss. I'm
having trouble concentrating on this letter.
Does anyone else have episodes triggered by the electrical devices I
have mentioned?

Welcome Melissa!
There's no new news on our front except that Lance started the Modafinil
trials yesterday. They drew blood, but didn't give him the medicine. He has
to wait until Monday for that. Right now he is off his ritalin completely,
which is rough. He will be staying with my Mother for the next couple of
days because she lives near his job.
More information will follow as soon as we have some.
Adele

thank you for joining the club..can you please
tell us a little about yourself? if you have any
questions or some type of topic you would like an answer
too. post them and hopefully we can help.<br
care,<br

Thought I would tell you all about me. <br
husband Chuck is a T-12 para. He had a bike accidnet on
November 8th 1997. He is doing really well now but was
scary at first. He almost didn't make it. We have been
married for 28 years and thank goodness I still have him.
Now I can torture him for 28 more...LOL It has been a
long road but we made it. If it was just his back that
he vroke things might have gone faster. But he had
so many injuries. I won't bore you with all the
details. But I am here to tell you that you canmake it.
Always talk to each other and be ther for one another.
Never give up and always say that you love each
other.<br

I am looking for somebody who can recommenr a phisician in Manhattan
to perform a photoderm.

Howdy everyone,just joined the club.A little
about me,i'm a T/6 para,28 months
post,farmer,single.I'm in the process of trying to farm again,i have
been on the tractors and things like that,but not
everyday like i used to be.I just got a new lift this
fall,but haven't got to use it yet,it needs modified to
work for me.Hopefully this winter when we get most our
work caught up,we will get it ready.<br
before my injury,we cancelled the wedding and then she
bailed a year and a half later.Best thing that ever
happened to me.Well thats me in a nutshell description.

wow and welcome to nicci181 and hinkle51. i just
wanted to say thank you both for a very nice chat! you
both are very kind and easy to talk too. i enjoyed
talking to you both. and i hope to do that again real
soon.. remember if there's anything that my partner ray
or i can do for you ,please feel free to ask us.
again welcome.<br

Nancy,
The polysomnogram and the MSLT are usually done in a sleep lab. If you are
seeing a neurologist you might want to ask him if he would refer you to a
sleep center. If you don't know if there is one near you, let me know what
area you live in and I can check and see where the closest sleep center is.
Here is some info on the tests:
Polysomnogram:
This is performed in an overnight sleep study. Small electrodes are attached
to you to monitor brain waves, eye movements, muscle movements, heart rates,
and breathing rates. This test can also identify sleep apnea and periodic
limb movements of sleep (PLMS).
Multiple Sleep Latency Test (MSLT):
This is a sleep study done during the day. It is done to measure your
tendency to fall asleep. It is normally performed within a few hours of the
polysomnogram. They will have you take four or five 20 minute naps every two
hours throughout the day. Narcolepsy is indicated when the patient falls
asleep within 5 minutes or less and if REM sleep occurs within ten minutes of
sleep onset in at least 2 of these naps.
I hope that this helps. If you have any more questions or if there is
anything you don't understand I will be more than happy to help you.
Carole

The only tests that I had done were the polysomnogram and the MSLT. Have you
had these done? There is also some blood work that can be done.
Carole

carolinawheels we have something in common .. i
was just recently divorce myself. i think thats
wonderful that your going to law school are you going to be
a specific lawyer? like family or abuse.. i would
like to know. i wish you luck in completeing law
school. and toad4, please tell us alittle about yourself.
thank you all for joining!<br

I was diagnosed with narcolepsy 18 months ago. Mine started when I was having
tremors one night while visiting my husband at work. He works at an ambulance
service so he decided after 2 hours of these tremors to take me by ambulance to
the emergency room. They first thought that I was having seizures, but after 4
days of testing they couldn't find anything and they diagnosed me with a
psychiatric problem. They thought that I was faking the seizures and that I
needed to be institutionalized. I was very angry because I had never shown any
symptoms of mental problems or psychological problems so I refused to be
institutionalized. I made an appointment to see a neurologist and he sent me to
Memphis to the Epilepsy Center. I was there for 4 days and again, there was no
medical diagnosis. When I went back to my neurologist, he sent me to have a
sleep study done. He said he didnt think that anything would show up, but he
didnt know what else to do. After my sleep study, I was diagnosed with
narcolepsy. I am now on Dexedrine. I suffer from sleep paralysis, hypnagogic
hallucinations, and most of all...excessive daytime sleepiness. Dealing with
Narcolepsy is something I have to deal with one day at a time. I would love to
hear other's stories about their narcolepsy as well as any other questions or
comments.
yours, and all tests are coming out normal!!!!
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Has anyone heard of taking Wellbutrin for Narcolepsy? I can't find the
combination anywhere on the Net. Wellbutrin is an anti-depressant, but acts on
the Serotonin level somehow. Thanks.
Meg
-----
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I would also like to know the exact name of what you ordered. I have
been recently told that I have Rosecea. It is not very severe, in
some cases it seems to be more like adult acne...something I never
had before! I is just bumps over my forhead and nose but I have tried
several things that have not worked. Thanks!

Hey everyone, my name is Kathy and I am a T-7
para, post 5 yrs, accidental gunshot. Ray...your friend
is probably the best person to ask how to refer to
her. I have met many people in chairs and they all
have their own preferences, it's like do you refer to
her as a lady, woman, mamam, girl, chic....personal
preference....I personally go with disabled, I don't like
crippled, but I'm not real picky. I try not to make a big
deal out of it, she has a sci (spinal cord injury)
depending on her own circumstances, she probably isn't
suffering from it any more, dealing with it YES. Try not to
get loaded down with it, most of us are use to all of
the terms. I hope this has helped and good luck
Ray.<br

I would like to know as well. My doctor has just put me on Wellbutrin for
Narcolepsy. Wellbutrin is basically an anti-depressant but seems to control the
serotonin level or something. I am anxious to see if it works. Does anyone
else take Wellbutrin?
Meg

thanks for joining angel's sci chat! please tell
us a little about yourself. and if you need anything
please feel free to talk to me or any of the members. i
would like for you to feel comfortable here. we are
going to try and use the chat room everyday . so if
your talking to another member, please use the chat
room. i would like everyone to get to know each
other.<br

welcome to the club ablec6 and rmamolsch.....
great pictures able my guy wants to do the same. it
looks like it would be really fun. i cant wait to see
him do that. your a great guy! keep up living life to
the fullest! your an inspiration to us all!!! well
everyone, ray needs some help,as you read he's involved
with a special lady who's in a wheelchair...he posted
a very good question about how he should introduce
his lady friend without making her feel
uncomfortable. me? i dont have that problem because i knew my
guy for many yrs! but if you can help ray out..that
would be the kindess thing anyone can do..so please
share you opinions with ray. thank you. and ray i hope
you find the answers to your questions here. take
care my dear friend..talk to you soon.<br

One of my symptoms of Narcolepsy is Automatic Behavior. I have had a lot of
problems with this symptom. Once, I had left the house, went to a strangers
house, and bought a dog. I do not remember doing this. I woke up from a nap and
saw a dog sitting in my living room. This was a pretty large dog and I was a
little scared since I had no idea where it had come from. I called my husband
at work and told him that there was a strange dog in our house. He informed me
that I had gone and bought the dog and that he and a friend of his had come by
the house and I cooked supper for them. I did not remember any of this
happening.
recollection of. I believe I was functioning under automatic behavior since I
did not experience a concussion or anything else that would explain it. I am
wondering if anyone else has had problems like this with automatic behavior.
Carole:
I haven't ever bought any dogs during automatic behavior; but I have experienced
it nonetheless. Once some friends came to see me. They mentioned their visit
to me the day before. They must have read from my expression that I had no
recollection of that visit. They told me that they had been there the day
before and I visited with them. They had no idea I was on "sleep mode" the
whole time.
Another time I had an incident which qualifies as sleep eating and automatic
behavior. I was visiting at my brother's home. I got a carton of ice cream out
of the freezer and noticed that someone had left it out long enough for it to
melt around the sides then it had been refrozen. I commented about wondering
who would do something like that. My sister-in-law laughed and said, "You did!"
She told me that my niece told her that when she got up early that morning she
found me in the kitchen eating ice cream right out of the carton. She said I
spoke to her, put my spoon in the sink, the ice cream in the freezer, then went
back to bed. She said as I walked down the hall I was staggering...bumping the
walls from side to side as I went. When she told me that there was some very
vague recollection of seeing my niece in the kitchen.
Who knows how many incidents have occurred that we just never know
about.........Pat
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Hi Jen,
Could you elaborate a little on your story. I would like to know what
problems you had the most. I have the breakouts all tyhe time and
they are big ugly and long to heal. What formula exactly do you use
of the immun26? Any special directions or just follow their dosage
recommendations? Any more info you can give I would greatly
appreciate. Feel free to email me directly also:) lora@...
Thanks so much!
Lora

hello karen thanks for joining and
welcome.<br
boyfriend is.we both live in ct and he's a para..T-4-5-6-7
he was injured on the job. i've known him for 8 yrs
as a friend,but during that time i got a divorce.its
been 1 yr for me. he is now going through the
samething.so we just started seeing each other almost 8 months
now and i cant begin to say how much of a wonderful
man he is!!!! he's 45 yrs old and i'm 40. i just
moved in a new home and im very busy trying to get it
ready..i'm looking to make it accessible for him.i opened
this club to have people share they're experiences
about life in a wheelchair.and also their mates or
friends are welcome to join in. the times for the chat?
well i would like for it to be used by all members
everynight if they choose. i go to other clubs and no one
uses the chat rooms. so i would like to change that!
please go in all of you and use the chat room
together!!!!! lets get to know one another all at once! if you
have any questions please feel free to post them or
send me a message here. hope to meet you all soon! god
bless you all. and thanks again for joining!<br
care.. angela

In message <000501bdeb40$be1f5280$d60a57d1@sharron
I find that its my short-term memory that is effected. My memory used to
be superb, but my short-term memory is shot to bits. I'm very forgetful,
and can forget the simplest things. I take provigil, and I find that
this improves my short-term memory as well as lifting the fog on my
long-term memory.
I agree with you, Sharron, about monotonous tasks, though.
Hugh
hughdw@...
Hugh Davies-Webb

Hi Jen,
Which of the following products did you buy?
Do you still need to take the product for maintenance?
5030 Immune 26 Can (31 day) $47.00
5040 Immune Support Chocolate Can (31 day) $59.00
5050 Immune Support Vanilla Can (31 day) $59.00
5060 Immune Support Strawberry Can (31 day) $59.00
5071 Immune Support Chocolate Packets (15 day) $35.00
5081 Immune Support Vanilla Packets (15 day) $35.00
5091 Immune Support Strawberry Packets (15 day) $35.00
6014 Immune 26 Capsules (15 day) $30.00
6016 Slim Capsules (30 day) $41.00
6017 Flex Capsules (30 day)
Rick

Hi everyone, I am excited about joining this
club. I am also a member of scipeersupport, and
wheelsgirl2 said this is a cool club too! I was injured about
a year and a half ago in a diving accident. It has
been a long strange trip, but I am happy with myself,
and I do anything I want to do. I am very outgoing,
so if anybody wants to say hey, please do so.
<br
out!<br

Elena,
yes, it does get confusing, and I am to blame. the Rosaceans Group at

Brady, I couldn't get to the list of foods or the recipes by the
database. What am I doing wrong.?
Sorry,
Elena

Hi, everyone, I'm Ray. I'm joining this group to
learn what I can about sci. I have a friend in a chair
and our relationship is developing beyond friendship.
I'm new at dealing with sci and don't even know the
proper way to refer to Nicci when I talk to people. Do I
say she's a victim of sci? she HAS sci? she's DEALING
with sci? I sure don't want to use terms that seem ok
to me but are offensive to someone in a chair. Sooo,
here I am, in a 'classroom' of sorts, taking a brand
new course! And looking forward to the adventure!

I thought that memory loss was just a part of getting older. Yes, sometimes
I look at the jacket of a movie at the video store and I find it interesting
until my daughter tells me we already saw it.
I can also work very well with details as long as I don't have time to get
bored. If I get bored, I get a sleep atttack.
Sharron

Does anyone know of any alternatives to using stimulants to control the
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Enter your vote today if you have not already
done so.
What non-prescription treatments do you use to
control your rosacea?
o Rosacea Diet ©
o Rosacea LTD III
o Linda Sy's Skincare Products
o Rosaceacare Skincare Products
o Purple Emu
o Sulpher Soap
o Jojoba Oil
o Flaxseed Oil
o Grapeseed Extract
o Sher System Products
o Featherstone Skincare products
o Rosacure
o Florasone
o Eucerin
o ELICINA¨ CREAM
o Dermalogica
o Clear'em topical lotion
o BLEND Solution
o Andrzej Wedrychowski's Formula
o Acne-Rosacea.co.uk Products
o Abby's Herb Company
o Natural Connection Herbal Treatment
o Joie de Vie Institute of Aesthetic Medicine
o Natures's Gift Rosacea Synergy
o Rosacea Resolved cream
To vote, please visit the following web page:

Ok I am here...LOL Now I have to monitor another
club...LOL Oh well the more the merrier. Hope to see you all
here and who knows maybe we can chat soon. Any ideas
on when we can chat? <br
give us some info on you? How, when where, that kindof
thing.<br

Enter your vote today if you have not already done
so. :
What prescription medication do you currently use
to control your rosacea?
o Metrogel products
o Antibiotics
o Intensity Pulsed Light Therapy
o Accutane
o other
To vote, please visit the following web page:

thanks for joining this club.it was a pleasure
talking to you..if you have any concerns or questions
please feel free to ask me. i will try to help the best
way that i can. again thank you!<br

In Re: Memory loss and movies
On yes. I have watched Tiatanic four times and I still can only tell you
that it was a great love story. More and more details will come to mind if I
really put my thoughts directly on that subject.
I took ds to see Godzilla and I don't remember buta very few things of that
one.
The memory that bothers me the most is when I am talking and I totally forget
what I was talking about or I come to a word that I know I know, but it is not
there and I have to make a complete idiot out of myself and say"well, at least
I got started with this conversation"
One thing I have learned over the years is that I personally have found it
much easier for me to cope with the N and C and the "Different" lifestyle that
we have, and I tell everyone that I know that I do have N and C andI will try
to tell them enough so that they will understand if I am in the middle of a
conversation and go to sleep or fall on the floor and sometimes I go into the
AB, just depends. This is a personal thing for me and I know that not all N's
want people to know that they have N and C and that is okay too, I just feel
bettter myself, if I give them a little space to try and understand or ask
questions.
For all of you that are not in a N support group, find one or make one and get
going. We have a small one here in Chatttanooga and all we do is meet once a
month at a restaurant and eat and talk. We have become really close these past
10 years or so, and it does make a difference for all of us. If any of you
live near Chattanooga, email me and I will let you know when and where we
meet, and if you don't, try to find out where some of the people on this
egroups list live and maybe you can start your own. It is well worth it
Didn't mean to write a book, but sometimes I get carried away and have to
write it down or I won't remember to do it.
Just a reminder
Don't drive any faster than your Guardian Angel can fly
(Can't remember who wrote this, but it fits me perfect)
Have a good one
Jean

thank you joining my club..as you see it's
starting to grow. i hope it will continue to do so! thanks
for making it possible. feel free to contact me or
any other member if you have any questions or
comments to make. your imput is important to us all. again
welcome.<br